Arianna Gennaro-Lugo

Age 37 days

We are excited to begin planning our 3rd annual Race for CDH fundraiser! Our 2015 race raised $3,032.25 which benefited Additional $360 was given in food gift cards to six CDH families who were staying in the NICU at Children’s Hospital of Philadelphia. Last year we raised $4,537.37!! All proceeds will benefit Arianna's CDH Foundation to help CDH families through our assistance grants. Our 3rd annual race is in the works with a 5K run/walk, 10K run, and kids relay. Saturday, June 17th, 2017 we will be hosting our race at the beautiful Eagle Rock Resort. You can find your walk/run registration form (HERE). There will also be  a DJ & food for purchase! 

A note from Arianna’s parents,

We want to personally thank everyone who has come & will be coming to our yearly CDH fundraiser. Launching Arianna’s CDH Foundation, has helped us through the loss of our daughter, Arianna. Roughly 50% of babies born with CDH do not survive. Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems. A few of the survivors suffer from severe long-term medical issues. CDH occurs as frequently as Spina Bifida and Cystic Fibrosis, yet there is very little research being done and virtually no media coverage. We believe whole heartedly in our (NOT for profit) non-profit organization. Please let us know if you have ideas or other resources to support our mission. Thank you for your consideration.